Susan's fundraiser for Dravet Syndrome UK

Susan Kirn-Moss is raising money for Dravet Syndrome UK

Every Day in May for Dravet · 1 May 2025 to 31 May 2025 · Start fundraising for this event

Every Day in May for Dravet is back for 2025! Join this epic team in walking, running, cycling or swimming 5km or 2km every single day throughout May, at a time and place to suit you.

Story

Thanks for taking the time to visit my JustGiving page.

This May I'll be going completely out of my comfort zone and running/hiking 5K everyday in May for all of the incredible Dravet warriors still here and in the memory of so many who have sadly lost to Dravet.

My own incredible warrior George is my absolute rock behind me doing all of this. George has been having a really rough time with his Dravet, especially in the last few months. At the beginning of February this year we nearly lost him again but George some how just kept going and managed to fight his fight again and I'm beyond thankful to say he made it through 💙

Thanks to the amazing support of our Dravet family , we are able to slowly but surely manage and cope with all the ups and downs this has given us all .

So please please please, if you can spare anything at all we'll be so grateful!!

#TeamGeorge💙

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About the campaign

Every Day in May for Dravet is back for 2025! Join this epic team in walking, running, cycling or swimming 5km or 2km every single day throughout May, at a time and place to suit you.

About the charity

Dravet Syndrome UK

Verified by JustGiving

RCN 1128289
Dravet Syndrome UK is dedicated to improving the lives of children and adults living with Dravet Syndrome through medical research, education and awareness and appropriate support.

Donation summary

Total
£1,380.00
+ £302.50 Gift Aid
Online
£1,380.00
Offline
£0.00

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