Sue O'Leary-Hall

Sue's fundraiser for Children's Heart Surgery Fund

Fundraising for Children's Heart Surgery Fund
£1,273
raised of £1,000 target
Event: Leeds 10k 2024, on 23 June 2024
In memory of Rose O'Leary-Hall
Children's Heart Surgery Fund

Verified by JustGiving

RCN 1148359
We support the Leeds Congenital Heart Unit to improve the lives of those with CHD

Story

We're doing the Leeds 10k in memory of Sue's 4 year old daughter, Rose, who died the day before she should have started school in September.

Rose was born with a terminal heart condition in 2019; her life expectancy was just a few days. However, Rose hadn't read that memo!

She underwent three rounds of Open-Heart Surgery; the first at 3 days old, the next at 10 months and the last in August 2023. Rose overcame some pretty horrific complications over her four years, including a stroke, seizures and paralysis down her left side, regaining virtually a full range of movement a few months later. Her indomitable spirit could not be suppressed - she was a proper Leeds girl!

Heart-breakingly, even though the final Open-Heart procedure looked to be a success initially, Rose contracted an infection from which she was unable to recover.

During Rose's time in the Paediatric Intensive Care Unit (PICU) at Leeds General Infirmary, Sue and her wife, Katie, would read Rose her favourite stories to keep her spirits up.

The day before Rose died, Sue and Katie invited friends to record a favourite story on their phones and send them over to play to Rose, so she could hear the voices of everyone who loved her.

Sue and Katie have now teamed up with the Children's Heart Surgery Fund to create an electronic library for the children and their families in PICU at Leeds General Infirmary so they can enjoy stories together during some of the most frightening and stressful times of their lives. As Sue says, "Stories are perhaps the ultimate means of escape into a different world of adventure, excitement and hope. And this library will be Rose's lasting legacy."

So if you can spare a couple of quid to provide some moments of hope and fun and lightness for a child and their family who are having a pretty rubbish time, that would be brilliant.

Thanks a million,

Sue, Jane, Susannah and Collette xxxx

#teamrose

#braverkinderbetter

#bemorerose

#3daysto10K

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About the charity

Children's Heart Surgery Fund

Verified by JustGiving

RCN 1148359
Children's Heart Surgery Fund supports children and adults born with congenital heart defects across Yorkshire and North Lincolnshire. Working alongside the Leeds Congenital Heart Unit at LGI, we are funded by generous donations from the general public and the amazing efforts of our fundraisers.

Donation summary

Total raised
£1,272.78
+ £279.50 Gift Aid
Online donations
£1,272.78
Offline donations
£0.00

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