Story
Hello,
As you may know, Jensen has been diagnosed with NF1 (Neurofibromatoses-Type 1).
This condition means that Jensen's future is very uncertain as the condition affects each person differently.
Neurofibromatosis (NF) is a genetic neurological disorder that can affect the brain, spinal cord, nerves and skin. Tumours, or neurofibromas, grow along the body's nerves or on or underneath the skin and can turn cancerous.
I'm supporting Nerve Tumours UK because their mission means a great deal to me. They provide crucial support to people living with the Neurofibromatoses- the conditons that cause nerve tumours.
They are dominant genetic conditions, which means that they can be passed on in families from one generation to the next through genetic inheritance. Similarly, about half of nerve tumours cases recorded have no previous family history of the condition. In other words, it can occur totally “out of the blue”.
Please help me bolster their support.