We are thrilled to be joining Myotubular Trust and supporters in person at this year's Hope Walk in London! 10K across 10 of the bridges along the legendary River Thames. We've been in training here in *New* England to get ready for the big event across the pond in the UK. We are so grateful for all the wonderful work that our friends at Myotubular Trust have done for so many years, and are looking forward to taking another "step" (or several thousand steps) together in our ongoing collaboration for the MTM-CNM family.

Each year since 2008, hundreds of supporters have taken part in the Myotubular Trust Hope Walks. We all walk with the same hope in mind - raising research funds to find a cure or treatment for myotubular (centronuclear) myopathy.

Myotubular myopathy is a rare and devastating muscle weakness, affecting mainly boys, from birth. It severely affects the muscles used to swallow and breathe. These babies & children are at a constant risk of dying, and usually from complications due to simple colds and coughs from which they are literally too weak to recover.

There is no public funding available for this rare condition - the research that has been funded is all thanks to the support of those living with the condition, and their families, friends and colleagues. We simply wouldn't be able to continue to fund world-class research projects without our supporters.

Thanks for supporting us, and helping to bring forward the day when there is a cure or treatments for this devastating condition.