Story
Hi,
I am running an ice cream and cake sale for CASK Research foundation, for CASK Awareness day. My youngest daughter Evie was born with an extremely rare genetic disorder, which has slowed her development as well as made every day tasks impossible. Because there is only an estimated 300 people world-wide diagnosed with the genetic disorder, not a lot of research has been done into the long term effects, which is where CASK Research has stepped up - They not only offer support for families struggling to adapt to life raising a CASK child, but also have put themselves at the forefront of research to assist the medical professionals that are helping us every step of Evie's life.