For my Birthday I would like to make a difference to children and families living with EB. Debra UK made such a difference for Clint and I when our daughter Zoe was born with Junctional Epidermolysis Bullosa. Her life was short and painful but in the 38 years since, research funded by Debra has made such strides and now there are real therapies, amazing support services for families and progress towards a cure.

DEBRA is a national charity and patient support group for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB) also known as Butterfly Skin. EB causes the skin to become very fragile and tear or blister at the slightest touch. With your help we can find treatments and cure(s) for EB.