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On the 7th of June 2025 we'll be climbing Snowdon, the highest mountain in England and Wales, to raise awareness of cavernoma and funds for Cavernoma Alliance UK as we mark the start of Cavernoma Awareness Month. This climb is particularly special as it marks 20 years since the charity was first founded in 2005 by Dr Ian Stuart.
Cavernomas look like raspberries and are found in the brain and spinal cord. They're formed of abnormal blood vessels with thin leaky walls, which can bleed at any age without warning. 1 in 625 people are thought to have a cavernoma, and whilst most people won't experience symptoms 1 in 2,700 do. Symptoms can include haemorrhages, seizures and other neurological problems. Treatment involves 'wait and see', neurosurgery or stereotactic radiosurgery.
Cavernoma Alliance UK was founded in 2005 by Dr Ian Stuart after his life changed over-night following a devastating cavernoma bleed. What started as a helpline run from Ian's bedroom quickly became a national charity, which now has over 4,000 members. Cavernoma Alliance UK's mission is to find a cure for cavernoma and it works to do this by promoting research and providing educational information and support services to people living with the condition.