Shannon Akers

Clara's fundraiser The Cri Du Chat Syndrome

Fundraising for The Cri Du Chat Syndrome Support Group
£1,569
raised of £1,500 target
Donations cannot currently be made to this page
72 holes of golf, 24 May 2024
We help families affected by CdCS to meet, support, and help each other.

Story

Thanks for taking the time to visit my JustGiving page.

Wayne, Adam and Ben have decided to take part in 72 holes of golf, meaning they will be at the course from 6am until sunset completing this challenge!

The charity is close to our hearts with our daughter Clara diagnosed with Cri-Du-Chat at 4 weeks old, she is now 6 and we still do not know much about the condition and how she is going to develop in the future with each child being so different. Each day brings a different challenge to our daily lives, impacting not just Clara but us as a family.

The charity aims to raise funds to help bring families together to support and inform and to offer grants to families that are in need. The registered charity number is 1044942.

"Cri-du-chat syndrome, is a chromosomal condition that results when a piece of chromosome 5 is missing. Infants with this condition often have a high-pitched cry that sounds like that of a cat. The disorder is characterized by intellectual disability and delayed development, small head size, low birth weight, and weak muscle tone in infancy."

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About the charity

We provide support, community friendship, grants and more to those with, and families of those with, the rare genetic condition Cri du Chat Syndrome.

Donation summary

Total raised
£1,569.00
+ £369.75 Gift Aid
Online donations
£1,569.00
Offline donations
£0.00

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