Story
Hi, and firstly a big thankyou for pledging money to such a great charity that is very close to my heart .Duchenne muscular dystrophy (DMD) is a progressive muscle-wasting disease. It is the most common and severe form of muscular dystrophy. Diagnosed in childhood, it mainly affects boys. Started by families affected by the disease, Duchenne UK is the leading DMD charity in the UK: connecting the best researchers within the industry, the NHS and families to advance and accelerate every stage of drug development.
Here is our story so far ....
me and my partner sarah have a beautiful son called nyle and in jul 2022 our world was turned upside down when he was diagnosed with Duchenne muscular dystrophy .. there is at the moment no cure .
At the moment he is doing well uses a wheelchair to get from A to B and through the love of me and sarah hes a very happy boy . his mobility will slowly deteriate and eventually he will be in a wheelchair permanently .
last year i did a 24 hr stream for Duchenne uk so on last years anniversary of the successful stream i wanted to do an even bigger one on mine and my friends mixcloud channel called the isle of wight yeah crew and also asked some of the best djs from around the world to play too so we doing a 60 hr stream .
Through music i want to raise awareness and raise some much needed cash for duchenne uk .
Thankyou for taking time to read this
much respekt to you much love
scott cameron (nyles dad)
xxx