I'm supporting Team Rae in the quest to raise vital funds for research and working towards a cure for MND by racing 100 miles along the UTMB Arc of Attrition...a pretty mad run along the Cornish Peninsula!

I've actually never used a race to raise money for charity, as it's always felt slightly disingenuous when it's something I love doing - BUT this one is different. It's going to be a massive challenge - it's the first "proper" race I've done on my new leg; it's huge and gnarly and run mainly in the dark in bloomin' January, the most rubbish month of them all - so I'm fully braced for some proper Scottish weather down there. But it's also going to be a big celebration of movement for me and hopefully smashing something that feels a little bit imposible!

So why am I using it to raise money for MND? MND hits home. I know what it is to lose movement and independence, which is only one facet of how MND impacts those living with it, and I can't ever take that for granted. More recently, I've seen directly how MND has affected people close to me.

I've chosen to support Scott Stewart in the incredible work he's doing to fundraise for a cure. His story is below:

Since being diagnosed with Motor Neurone Disease in March 2023 , I have been blown away by the support, warmth and generosity shown by family, friends and strangers alike.

Nothing could ever have prepared us for what has come next; the frustration of my slow, progressive decline and anger that in 2024, there are limited treatments and no cure.

Our daughter, Rae, was born on May 20th 2024. I want her to grow up in the knowledge that her Dad did everything he could to help raise awareness and educate others about the condition, and so that she could live in a world free from MND.

We have been asked countless times in the past 18 months:-

’Let me know if I can help in any way’

We want to ask you now to help Team Rae raise money for My Name’5 Doddie Foundation from now, until what would have been Doddie Weir’s 55th Birthday - 4th July 2025.

Doddie Weir put the needs of others ahead of his own, to be the catalyst for what is now not just awareness, it is a movement towards finding better treatments and an ultimate cure.

The My Name’5 Doddie Foundation funds vital research projects to find that cure, however, to our family it means so much more. They have embraced us, made us part of the ‘Doddie Family’ and left us in no doubt that their work will not stop until better treatment and cure are found.

HOW CAN YOU HELP?

Please make a donation through this page.