sam lambert

2025 London Marathon - running for Stickler Syndrome UK

Fundraising for Stickler Syndrome UK

£1,031
raised of £2,000 target
Event: London Marathon 2025, on 27 April 2025 Start fundraising for this event
Welcome to the Stickler Syndrome UK campaign page for the 2025 London Marathon event.

Story

In 2017 my little brother Jacob woke up one morning blind in one eye. He had emergency surgery at our local hospital but unfortunately his sight did not return as it was. He was referred to Addenbrookes to see if he had Sticklers! Results showed he did and just before & during Covid he had 7 more operations! Again overnight blindness, cateract surgery, buckles you name it he went through it. He has been an absolute soldier! Thankfully one op gave him a decent amount of sight in one eye and it has remained stable for 2 years, allowing him to do all his own work at school and become surprisingly quite an accomplished artist & tennis player. We don’t know how he does it! Thank goodness for the research team & his amazing surgeon Mr Snead who performed what we feel like was definitely miracle surgery. With that in mind, my older brother Charles & I would like to give something back to the Stickler charity. So we are starting with the London Marathon. Money raised to continue research especially , would be absolutely brilliant. So please sponsor us & help this very special charity raise much needed funds.

Thank you

Sam

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About the campaign

Welcome to the Stickler Syndrome UK campaign page for the 2025 London Marathon event.

About the charity

Stickler Syndrome UK

Verified by JustGiving

RCN 1060421
Stickler Syndrome UK aims to raise awareness of Stickler syndrome amongst the medical profession; promote the value of early diagnosis and help preserve vision, hearing and mobility (particularly the prevention of sight loss in children and adults).

Donation summary

Total raised
£1,031.00
+ £202.75 Gift Aid
Online donations
£1,031.00
Offline donations
£0.00

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