Hello!

If you know us you may know that in 2022, Jess's mum Steph was diagnosed with Primary Progressive Aphasia (PPA). This is an extremely rare brain condition that affects speech and language - so rare that even many health professionals are not familiar with it.

When mum was first diagnosed, we were completely in the dark really with not very much support or information given to us about what to do next. Then we found Rare Dementia Support, and we finally felt like there was someone out there who could support us.

For that reason, Ryan and I are going to be running the Royal Parks Half Marathon in October 2013, raising money for The National Brain Appeal, the charity that funds Rare Dementia Support.

We would really appreciate any donation you can give to help us raise funds to continue RDS's brilliant service.

We would also really appreciate it if you could take a little time to understand a little bit more about Primary Progressive Aphasia so that people are more aware of this very rare condition, as one of the hardest things from mum's diagnosis has been feeling like no one understands. Please find out more here: https://www.raredementiasupport.org/primary-progressive-aphasia/, or ask Jess for further information and she'll be happy to share :)

Thanks so much in advance for any donation you can give!

Ryan & Jess x