This year, on October 20th, Shaun and Liam will be dusting off their running shoes, and aiming to complete a half marathon on behalf of SOFT UK.

For those who don't know, Emilia, Shaun's daughter, and Liams God Daughter, has Mosaic Trisomy 18, so the pair will be fundraising on behalf of SOFT UK, the leading charity who support families affected by Trisomy 13 and Trisomy 18.

SOFT UK was started to provide a much-needed support network for children and families affected by Pataus' and Edwards' Syndrome and related disorders. Since its humble origins almost 30 years ago, SOFT UK has grown into a much larger organisation run by families for families.

Ninety percent of the volunteers and staff team have a link with Trisomy within their own families, helping to alleviate the isolation that comes with a Trisomy diagnosis.