Thank you so much for visiting our page! We are a small group of parents, friends and family of someone living with ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome), and Long Covid.

Team members: Sarah Spence (and friends Lucy, Helen and another Sarah), Rachel Saint, Rachel Pryke, Paul Watson, Claire Carter, Niki Flowers, Emma Fowles, Jo Fiore, Katie, Sharp, Michelle Linbourne (and daughters Scarlet & Amber).

Throughout May 2023, as part of ‘Walk for ME’ and ME Awareness month, we will all be challenging ourselves to do sponsored runs, cycle rides and walks to raise awareness and raise funds for much needed medical research, for everyone affected by M.E. & Long Covid, and their families.

🌟 Sarah and friends will be running a half marathon along the Thames path on May 7th, and are having a Park run cake sale on March 24th. Rachel S will be cycling 50km over 2 days and running 10k!

On May 21st Niki will be running the Manchester Half Marathon, Claire will be running her own half marathon in Cornwall 😁

Rachel P will be running 10k, Emma will be cycling (distance tbc!) Katie is running (distance tbc!) Jo is running and /or cycling depending on knee injury 😬 (tbc) and Michelle, with daughters Amber and Scarlet (Team Scarlet) will be doing a 5k walk and having a cake sale.

And to to finish, Paul will be cycling 100 miles for RideLondon-Essex 100 on May 28th 🙌

ME/CFS affects an estimated 250,000 people in the UK and around 17 million people worldwide. In most cases ME/CFS is triggered by a virus and now there are increasingly millions more people with long term debilitating symptoms following covid 19 infection, some of who meet the diagnostic criteria for M.E., adding significantly to the total number of lives affected.

There is nothing that modern medicine can do due to decades of government underfunding and pretending the illness does not exist - research is urgently needed more than ever.

Myalgic Encephalomyelitis (M.E.) is a long-term (chronic), fluctuating, neurological disease that causes symptoms affecting many body systems, more commonly the nervous and immune systems. People with M.E. experience debilitating pain, fatigue and a range of other symptoms associated with post-exertional malaise, the body and brain’s inability to recover after expending even small amounts of energy.

ME/CFS touches all social groups and all ages, including children, and has a big impact on a person’s ability to carry out normal activities, including everyday tasks, keeping a job, going to school, and taking part in family and social life.

Many people with ME/CFS are unable to work, and are house or bed-bound, some unable to feed themselves or move at all; with no prognosis and no cure or treatments that work.

"....doctors do not treat us and science does not study us. How could a disease this common and this devastating have been forgotten by medicine?" Jennifer Brea

ME Research UK believes that only biomedical research can find the causes of ME/CFS, improve diagnosis and treatment, and, ultimately, arrive at a cure. That’s why research is our focus.

To find out more please visit the ME Research UK website:

https://www.meresearch.org.uk/research/our-projects/

Thank you so so much for your support, every penny raised is so hugely appreciated, Thank you 🙏