On 12th December 2022 our little girl Evelyn was born with a rare metabolic condition called Phenylketonuria (PKU). She will have to follow a low protein diet (avoiding 85% of foods), and relying on special medical foods and protein substitute - for life. There is currently no cure for PKU.

On Sunday the 15th September 2024 the PKU community will come together to take part in races around the UK to fundraise £10,000 for the NSPKU.

The NSPKU use donations to support those living with PKU and their families through: education and research, support, community, advocacy and campaigning.

We have decided to take part in the NSPKU race to £10k event by running in the Birmingham Running Festival.

Jake, will be running in the half-marathon & Robyn the 5k (having not run at all since before getting pregnant with Evelyn at the start of 2022 and having only 6 weeks to prepare…).

Please donate to enable the NSPKU to continue their work in supporting our family and the wider PKU community!