Robin Cull

Robin's fundraiser for ME Association

Fundraising for ME Association
£1,649
raised of £1,000 target
Donations cannot currently be made to this page
Event: Ride London 2023, on 28 May 2023
ME Association

Verified by JustGiving

RCN 801279
We help people with ME/CFS to understand and survive their illness

Story

After a lifetime of sloth I took up road cycling in 2021. I've worked up my ride distances and managed a metric century (100km) in March 2022. I've entered RideLondon Essex 100 this year to try and complete an imperial century (100 miles). The ride is on Sunday 28th May 2023.

My father, sister-in-law, brother-in-law and cousin all suffer from ME. My father has suffered for more than 10 years and it ended his career. My sister-in-law is effectively housebound has missed countless family events. I have seen first-hand how debilitating and life altering this condition can be.

ME is also widely misunderstood, can only be diagnosed by exclusion and there is no cure either therapeutic or pharmaceutical. As a relatively unknown and low profile condition compared to illnesses such as cancer, heart disease or physical disabilities there is disproportionate lack of funding and research. There appear to be strong links between ME and long-COVID.

I am raising money for the ME Association to support their research activities and support for affected people and their families.

You can track me on the Ford Ride London app and the full map is here if you want to see me on the route. I’ll be wearing my custom ME Association jersey which I designed myself so I’ll be easy to spot!

ME Association:

ME (Myalgic Encephalopathy), or Chronic Fatigue Syndrome, blights the lives of 250,000 people in UK today. The smallest exertion can floor them; their joints and muscles ache unbearably; restful sleep eludes them; and ‘brain fog’ clouds their thinking. It changes lives drastically – disrupting study; making work impossible; and straining family relations to breaking point. Many sufferers cannot leave their homes. There is no known cure.

Please help us to help them.

About the charity

ME Association

Verified by JustGiving

RCN 801279
The ME Association campaigns hard to get ME recognised as a severe neurological illness. Our helpline provides essential information and support to adults and children who have ME/CFS, and to their families and carers. We also fund biomedical research into the physical nature and causes of ME/CFS.

Donation summary

Total raised
£1,648.58
+ £330.00 Gift Aid
Online donations
£1,648.58
Offline donations
£0.00

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