Robert Durbin

Rob's Three Peaks Challenge for Rubinstein-Taybi Syndrome Support Group

Fundraising for Rubinstein-Taybi Syndrome Support Group

£1,505
raised of £1,000 target
Donations cannot currently be made to this page
Event: Three Peaks Challenge, from 7 October 2023 to 9 October 2023
We support families affected by RTS to make sure they know they are not alone.

Story

My son Rohan was diagnosed with Rubinstein-Taybi Syndrome (RTS) shortly after birth.

The RTS support group play such an important role in providing support and guidance to family's of those with this increadibly rare syndrome.

The money raised from the Three Peaks Challenge will contribute towards the RTS Support Group’s co-funding of a PhD student with Aston University to carry out research into mental health in RTS, as well as providing other RTS families with vital support.

If you are able to donate anything to the cause it will be very much appreciated :)

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The RTS Support Group is a registered charity funded almost entirely by fundraising and voluntary donations.

We exist to provide support to families and carers of people affected by RTS, raise awareness of RTS amongst the medical community, and encourage and support research into the cause and effects of RTS.

The charity supports individuals and families, produces and distributes information on research, medical and policy developments and arranges social family get-togethers to create a supportive network for RTS families.

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About the charity

We are a small national charity supporting families affected by RTS, a rare chromosome disorder, the main features of which are a learning disability and a high incidence of various physical and behavioural problems. We are entirely dependent on donations and all funds directly benefit families.

Donation summary

Total raised
£1,505.00
+ £320.00 Gift Aid
Online donations
£1,505.00
Offline donations
£0.00

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