I am competing in the IRONMAN 70.3 Swansea event in July, which is a long-distance triathlon comprising a 1.9km open water swim, a 90km bike ride, and a 21.1km run. My goal is to raise awareness and funds for PSPA, the only UK charity dedicated to improving the lives of people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). PSPA provides information and support for people affected by PSP & CBD while also funding research into their causes, treatment, and eventually a cure.

My grandpa, James Somerville Weir Black, also known as Jim Black, died at the age of 69 three years after diagnosis. At that time, PSP was not widely known about, and local doctors recommended a specialist in London to confirm a diagnosis. Jim's condition affected his strong sense of identity and independence, with his balance, movements, and eyesight being the first to deteriorate. It was a sad and painful experience for my mum's family, who mostly felt helpless in managing his symptoms.

The charity is crucial for raising awareness, encouraging early detection, and providing support and guidance to manage and slow down the disease progression. The aim is to improve the quality of life for each individual affected by PSP & CBD, giving them the best possible chance to live their best life.