Rachel Barnes

Rachel's bike ride for The PSP Association

Fundraising for The PSP Association
£3,192
raised of £2,000 target
Donations cannot currently be made to this page
160 mile bike ride for my Dad and PSP., 28 May 2023
The PSP Association

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RCN England and Wales 1037087 / Scotland SC041199
We offer support and fund research to improve the lives of those with PSP/CBD

Story

In memory of my Dad, Nick Holford, who passed away from PSP in January this year, my husband, Ian, and I are cycling 160 miles over two days from my childhood home in Horsham West Sussex to my Dad's home before he passed away in Langham, Rutland. Before I started training I had never cycled more than 20 miles. Ian will be riding my Dad's old bike from the early 70s.

PSP is a condition in which the messages to and from the brain get increasingly blocked causing a gradual shut down. A bit like Alzheimer's, Parkinson's and MND, rolled into one but with no treatment currently available. My Dad fought like a trooper, was brave until the end, facing it like the scientist he was and ensuring we fulfilled his final wish, to donate his brain for research into this cruel disease.

PSPA is the only UK charity dedicated to improving the lives of people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). They provide information and support for people affected by PSP & CBD whilst funding research into the causes, treatment, and eventually a cure. Together we can stop PSP & CBD in their tracks.

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About the charity

The PSP Association

Verified by JustGiving

RCN England and Wales 1037087 / Scotland SC041199
PSPA is the only UK charity creating a better future for everyone affected by Progressive Supranuclear Palsy and Corticobasal Degeneration. If you need support, please contact the PSPA Helpline on 0300 0110 122 helpline@pspassociation.org.uk

Donation summary

Total raised
£3,192.00
+ £747.75 Gift Aid
Online donations
£3,192.00
Offline donations
£0.00

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