Hero is a twin born at the start of the pandemic. He has a twin brother, and elder brother and sister who are unaffected by DMD.

Already in his short life he has faced big differences in his abilities with frequent falls and fatigue. As he grows he will understand more, and see the differences for himself.

I have 2 kids who both love playing with Hero and his siblings. We go on adventures in the woods. Read books and play cars. Normal childhood activities. We want Hero and his family to be able to have the same opertunities as other families without having to worry that Hero will be excluded or unable to join in.

We hope by raising awareness of his condition he gets to enjoy life, and minimise the inequality of opportunity for him.

From Hero's mum:

When sitting and telling our older children about Heros condition we explained his muscles didnt work like ours, he would get more tired and need a wheelchair to get around. His sister simply said that it was ok as he can throw the ball and they can run and get it!

Her beautiful mind already working out how to include him in play, yet we want more for him! We want him to run, to jump and to have a childhood of fun and joy!

Thats why were raising money, for his future!