Hello 👋

As many of you are aware, Woody was diagnosed with a super rare disease at the age of 3 months. Named Congenital Dyserythropoietic anaemia (CDA) this affects around 1 in a million people.

We are raising money, by walking 50 miles throughout March. To gather some funds for a small charity called congenital anaemia network (CAN). They have supported us to unite with other family’s who also have a CDA diagnosis. Which has proved invaluable to us, while navigating the unknown, and learning about Woodys super rare disease.

I will post updates on this page, as Woody and I stomp the ground and get these 50 miles done.

How CAN are planning to help people this year;

-Provide expert emotional well-being support, designed and delivered by qualified psychologists

-Help members of our community to access benefits and insurance

-Publish new up-to-date information resources to help people understand the condition, current research and treatment

-Facilitate improved opportunities for peer-to-peer support

-Raise awareness and help you to explain the condition to clinicians, teachers, employers, and the public.

Thanks for reading, and following our journey, love Woody, Polly, Matthew, Willow & Wren ❤️