Peter Oakes

Peter's fundraiser for CSF Leak Association - The Cerebrospinal Fluid Leak Charity

Fundraising for CSF Leak Association - The Cerebrospinal Fluid Leak Charity
£1,100
raised of £500 target
Donations cannot currently be made to this page
Event: Great North Run 2023, on 10 September 2023
CSF leaks are painful and incapacitating caused by a hole in a membrane containing fluid protecting the brain and spine crucially they're treatable but often misdiagnosed. We work to get patients treated promptly for the best chance of full recovery

Story

I am again participating in the Great North Run on the 10th September 2023.

This year I’m pleased to be running on behalf of this small registered charity C.S.F. Leak Association (Cerebrospinal Fluid Leak) to raise awareness of this very debilitating condition. They rely completely on donations and funds raised by volunteers so I’d like to be a part of that.

We all have a small amount of fluid in our skull called Cerebrospinal fluid. We can’t live without it and a CSF leak is a loss of the fluid that surrounds, cushions and cleanses the brain and spine, resulting in crippling pain and disabling neurological symptoms which progressively worsen with sitting or standing. This means people spend most of their time lying flat, unable to participate in any kind of normal life. Once active people suddenly find themselves isolated, unable to work, care for themselves or their family. The impact of this on families is devastating and causes a high mental health burden. It can happen to any one of us at any time.

This charity is run solely by volunteers meaning every penny goes towards increasing understanding and providing support for patients. So together let’s try to make a small difference and help to not only raise some awareness, but provide support for sufferers as well as securing future advancements in treatments and diagnostic equipment.

Thank you for your support, I will do my best.

Pete

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About the campaign

CSF leaks are painful and incapacitating caused by a hole in a membrane containing fluid protecting the brain and spine crucially they're treatable but often misdiagnosed. We work to get patients treated promptly for the best chance of full recovery

About the charity

We’re a UK charity dedicated to CSF Leak sufferers we support and empower them to access specialised care. We co-ordinate and fund research, our goal, to ensure swift, accurate diagnosis and effective treatment of all CSF leaks. Together we can stop CSF Leaks, prevent disability and transform lives.

Donation summary

Total raised
£1,100.00
+ £221.25 Gift Aid
Online donations
£1,100.00
Offline donations
£0.00

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