Story
Most people know I love a physical challenge. I don’t usually ask for sponsorship but this time it’s different….
The Isle of Wight Ultra Challenge is a 66mile ultra marathon circumnavigating the Isle of Wight. This is a continuous race, and I intend to compete to finish in my best possible time not just complete it! My training plan is underway and I’ve run every day during February, upping the mileage week by week, month by month. Having said that, this race is a daunting prospect. Yes I can run, yes I’ve done marathons and Ironman’s but how do you even contemplate running 66miles in one go as fast as you can?!
Most people know that my dad sadly died of MND when I was 20, and that’s why I’m raising money for MNDA. Any support for patients and their families can make a difference, so dig deep, I’ll have to on the run!!
Motor neurone disease (MND) is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting.
MND can affect how you walk, talk, eat, drink and breathe. However, not all symptoms necessarily happen to everyone and it is unlikely they will all develop at the same time, or in any specific order.
Although there is currently no cure for MND, symptoms can be managed to help you achieve the best possible quality of life.
We need your support.
£160 could fund a specialist communication app for a tablet/smartphone/laptop to enable a person with MND to continue to communicate with loved ones
£280 could fund the co-ordination of care for a person with MND at a care centre for a year
£1000 could pay for detailed analysis of the DNA of someone with MND to help us better understand the causes of the disease