Parker, Tanya and Agnivo's fundraiser for The British Porphyria Association (DofE award)
Fundraising for The British Porphyria Association
Fundraising for The British Porphyria Association
We are 3 Highworth students, currently volunteering for the Gold Duke of Edinburgh award, and we are looking to raise money for the BPA through multiple events, such as livestreams, purple days and many more!
Join the campaign to fundraise for a Residential Activity Weekend developed primarily for children and young people affected by erythropoietic protoporphyria (EPP).
EPP is a rare genetic condition that causes excruciating pain and skin damage on exposure to sunlight. Symptoms make daily activities, including education, sport and personal relationships a huge challenge – impacting negatively on physical health, relationships and, in the long-term, financial stability and psychological and emotional wellbeing.
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