Jessie Hunt
OTIS'S VOICE - CHARITY FUNDRAISER
Fundraising for Three Wishes
Story
Hello!
my name is Jessie, I live in Wigan & I am a parent carer to my son Otis. As well as being perfect, Otis is Non verbal Autistic, has a learning disability, & has sensory processing disorder.
For the last two years I have been pushing to create change at Wigan hospital. After lots of experiences with Otis throughout the trust particularly A&E, it highlighted to me the lack of understanding, training and resources available to support Autistic and disabled individuals. If my son had a physical disability that meant he was a wheelchair user, a ramp would be made to support this, and rightly so! However it became very clear that hidden disabilities are not taken as seriously. The last 2 years I have attended countless meetings, phone calls & email exchanges. I have reached out to other parent carers to collect their experiences too in hope that I could make everyone's voices heard.
I created a document, I have named Otis's voice. Which contains our story, the parent/carers voices I have collected along the way, In the document I have also created Otis's mission which is a list of reasonable adjustments I want the hospital to make to provide an inclusive healthcare journey for the people who need it.
Despite countless push backs, I have continued to push my message and in April I was filmed with my son to tell our story. This month I attended my biggest meeting since starting this fight which was at trust HQ in the board room for my film and Otis's story to be shared with the trust's board/executives and chair of Wigan hospital.
I recently had a meeting and have been given the green light for the changes I have asked for to finally happen.
The 2 years spent fighting for this has now become reality and the hospital have now set up a task and finish group for me. Which they have named "The Otis project"
The money raised from this event will go to the hospital charity “three wishes” to fund ‘The Otis project’ which will all be used to make the perfect sensory/quiet space, as well as many other adaptations and changes needed to create an inclusive environment at Wigan A&E and to make Otis's mission a reality.
As well as this page asking for donations, I have also organised a fundraising event 27th July all details and links are below.
My reason for all of this is my beautiful son Otis, I want to make sure that his voice is heard and to create an inclusive environment for all of those that need it. as well as working with the staff to change a mindset and create understanding.
The future goal is to to make Otis’s voice heard in every hospital - nationwide
Thank you to everyone who donates & supports our fundraising for the Otis project, it means so so much!
- Jessie x x
@Otisticme
FUNDRAISER DETAILS & LINKS:
https://www.instagram.com/reel/C8y1HXnsRhT/?utm_source=ig_web_copy_link&igsh=MzRlODBiNWFlZA==
