Marfan? Never heard of it. That was us in early October 2023. Now please review what it is.

Now consider what that means for kids. Oliver was 9yr old when this started and 10yr old when diagnosed.

”At least you can now blow bubbles”.

This is what Oliver and I said to each other, weirdly giggling, after his lung surgery in September. His physio - he learned to breathe properly again after his lung collapsed twice consecutively. His secret power - titanium staples in his right lung.

Diagnosed with Marfan syndrome in January 2024, it won’t stop this amazing lad!

As he left hospital he asked to climb Ben Nevis to raise awareness for the charity. So that then means we’ll be doing it as well with him every step of the way in May. Then watch out Snowdon later this year in summer. A double header.

Because he’s such an inspiration with the way that he faces Marfan, dad will climb Mount Toubkal in April.

No more rugby or judo for Oliver, but coaching, hiking and football are now on his radar!

Thank you for donating in support of this incredible, amazing and brave young lad. Meet him and you’ll spend time laughing at his jokes.

He’s an inspiration to us all and we love your determination - even if you don’t tidy your room!

This is Oliver’s fundraising page.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.