Nora loves the things you might expect of 7-year-old girl: playing with her toys, listening to music (especially Disney and showtunes), long soaks in the bath and getting her hair done. And of course, adoring her big brother! She's a bubbly, content and utterly adorable little girl.

But Nora also needs a level of support you'd never expect for a 7 year-old. Her complex epilepsy has left her non-verbal; unable to walk, sit or stand; seriously visually impaired; prone to chronic seizures and serious chest infections; fed through a tube into her tummy; and utterly dependent on others for every part of her day.

Nora needs extensive changes made to her home if she is to continue to be looked after here. The bungalow we live in needs a new bathroom extension built, bedrooms knocked together, wider doorways and hallways, and the roof rebuilt to accommodate the changes. Her brother has to have a new bedroom too as his gets swallowed up in the changes - they can't share as Nora uses nighttime breathing support and has parents/nurses in her several times each night.

We've been granted £30,000 from the council but even this doesn't go all the way - for example, Nora's specialist height-adjustable bath alone will cost £13000!

We've put every spare penny - and then some - into the costs, and family have been incredibly generous in helping us get started. But even then we are short of what we need.

Funding towards specific items - a bath, new flooring and lighting - will help us give Nora the home she needs.

With thanks to Sullivan's Heroes for helping us to get this page up and running