We’re now 18 months into Ruby’s diagnosis and we want to celebrate her and keep raising awareness for mitochondrial diseases which can tragically affect children like Ruby, suppressing their batteries. Whilst Ruby is well we want to have fun and make memories she can be a part of and so this family fun evening is perfect! With special thanks to Debbie coming up with this idea. It will be raising money for the Lily Foundation which funds research and supports families with mitochondrial diseases, for which there are too many and rare.

Ruby Wren Marshall was born perfectly healthy on 24/02/21 and remained so until she was around 6 months old when she was found to be severely anaemic. Her bone marrow wasnt working well. It would be a further 5 months until she was diagnosed with Pearsons Syndrome; a mass deletion of her mtDNA.

This means some of her mitochondria in her cells (which provide the energy for the cells to work) do not work properly. As she grows the faulty mtDNA will start overpowering the healthy ones resulting in failure of her pancreas, followed by liver, kidneys, eyes, ears, heart, muscles and her brain.

Science can and will beat this, but it needs to be sooner and not later for Ruby, She just needs better batteries in her cells.

I have created this fundraiser to help - so please help me help Ruby, The Lily Foundation and all those with mito by donating today.

Thank you for your support