Nikki Love

Nikki's fundraiser for KEEP ME BREATHING

Fundraising for KEEP ME BREATHING
£2,120
raised of £10,000 target
Donations cannot currently be made to this page
Running from John O'Groats to Land's End via National 3 Peaks, 21 July 2024
KEEP ME BREATHING

Verified by JustGiving

RCN 1201757
We are building The Breathing Pacemaker to improve the lives of children with CCHS.

Story

A race against the clock for the long-distance runner and the charity with a big mission!

I've teamed up with a remarkable charity to run the whole length of mainland Great Britain (including running up and down the Three National Peaks), to raise awareness and much-needed funds for the charity Keep Me Breathing (KMB).

I'm a 57yo long-distance runner who likes to push the edges of physical endurance, and starting on Sunday 21st July I'll set off from John O'Groats aiming to set the Female Fastest Known Time of the JOGLE3Peaks by running 35+ miles per day to reach Land's End via the 3 Peaks of Ben Nevis, Scafell Pike and Snowdon (Yr Wyddfa) within 30 days. And raise over £10,000 for Keep Me Breathing.

Keep Me Breathing is also in a race, but of a different kind. The charity was set up just last year with a single goal - to develop and bring to market an advanced technological device world’s first specific treatment, The Breathing Pacemaker , to treat children with a rare breathing condition known as CCHS (Congenital Central Hypoventilation Syndrome).

This condition is caused by a faulty gene and children born with CCHS lose control of their most vital function - breathing. Children (and those who survive to become adults) with CCHS cannot breathe without a ventilator when they fall asleep, and sometimes when they are awake. In addition, a trained nurse is required to monitor a child with CCHS every single night in the family home to ensure their ventilator does not disconnect or need adjusting.

This adventure will have the highest elevation I've ever done over the distance and our target of £10,000 will be the most I've raised in one event. I hope to be able to smash both of these personal records keeping a smile on my face, and keeping young children like Casper breathing.

Here's the story of Keep Me Breathing, Casper, and his mummy and daddy - James Oakley and Stephanie Roberts.

https://keepmebreathing.com/caspersstory/

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About the charity

KEEP ME BREATHING

Verified by JustGiving

RCN 1201757
Working relentlessly to make breakthroughs in CCHS research. We are building The Breathing Pacemaker. A first of its kind. Please follow our story.

Donation summary

Total raised
£2,120.00
Online donations
£2,120.00
Offline donations
£0.00

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