My brother Toby (aka Pup) was diagnosed with mitochondrial disease via the 100,000 genomes project. ‘What on earth is mitochondrial disease?’ you may be asking.....

His family had never heard of it and had no idea what to expect. One of the consultants at RMCH told them about the Lily Foundation. Toby's mum reached out to Liz who talked me through how the Lily Foundation helps and supports families living with mito and put me in touch with some other mito families. As a family they have never looked back.

The Lily foundation is so much more than a charity, more than raising awareness and funding research. The Lily Foundation is a family. A family of incredible people that have found themselves in a horrible situation but turn up and support their families and other ‘Lily families’.

This is why I want to raise money. To help fund research and to help support other families like Pup's that are scared about the future.