My cousin Albie was born with Epidermolysis Bullosa.

'EB' is a rare skin condition that makes the skin incredibly thin and brittle. It is usually inherited, but neither Uncle John or Aunty Hannah have it. Mum says it was a really unlucky freak genetic mutation.

When Albie was born he had no skin on his arms and legs. Mum says he had pain medication for the first few years of his life. There is no cure for EB.

Albie copes with it all really well. He does everything I do. His unique genetic version is not as bad as it is for many who are not as fortunate as him. Aunty Hannah, his mum, is a wonderful nurse and has lots of magic cream and special plasters.

I'm doing this sponsored challenge this half term for DEBRA (and for my BRONZE Ermysteds Award - my school challenge)

Over half term I'm going to virtually climb Mount Fuji, the iconic symbol of Japan. This challenge will take me 24 miles (40 km) from the mysterious forest and caves at the foot of the mountain, to the shrines worshipped by pilgrims for centuries, to the volcano crater on the top.

DEBRA is the national charity supporting those directly affected by, and working with, Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides lifelong care and support to the entire EB community.Together we #FightEB and together we will beat EB.DEBRA is the national charity supporting those directly affected by, and working with, Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides lifelong care and support to the entire EB community.

Together we #FightEB and together we will beat EB.