Nicky's fundraiser for the Liz Clarke-Saul Fund, Bone Cancer Research Trust

Nicky Hobbs is raising money for Bone Cancer Research Trust
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Sup Bike Run - Dorset · 16 July 2023

The Liz Clarke-Saul Fund is a Special Fund of the Bone Cancer Research Trust raising vital funds for life-saving research into adamantinoma.

Story

I am training to complete the Bike Sup Run triathlon in July to support pioneering research into Adamantinoma for the Liz Clarke-Saul Fund at the Bone Cancer Research Trust.

Liz Clarke-Saul was a wonderful human being. She was diagnosed with Adamantinoma, a rare bone cancer, as a child. She underwent years of operations and treatment; at the age of 14 her leg was amputated.

I met Liz many years later, in 2017 when I became her boss at University College London. I immediately liked this clever, funny, and incredibly dedicated woman. Liz worked for UCL part time but also trained and competed for the GB paracycling team. The energy she poured into her sporting career as well as her professional career was genuinely awe inspiring.

Liz was training hard and working hard, she was engaged to her boyfriend, Jack, when she found out that her childhood cancer had returned. She received a terminal diagnosis in 2018.

Liz should have been planning for a life with her husband and pushing toward Olympic competition. Instead, following her diagnosis she set up the Liz Clarke Saul Fund with the Bone Cancer Research Trust to improve knowledge about this rare cancer and help others.

Liz passed away in 2020, she was only 31. The fund she created is already making a difference and helping to grow knowledge about this rare cancer.

With the permission of Liz's family and husband, I would like to raise some money for her fund to help research into Adamantinoma in memory of my friend. I'll be heading to the Sup Bike Run challenge in Dorset in July, I'm training at the moment and causing much giggling amongst my family by donning a wet suit for chilly UK SUP adventures.

“I want to change the landscape of adamantinoma for patients in the future so that another me, in however many years’ time, won’t be sat down by their oncologist and told that there is nothing they can do.” Liz Clarke-Saul.

Find out more about Liz in her own words https://specialfunds.bcrt.org.uk/liz-clarke-saul-fund/

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About the campaign

The Liz Clarke-Saul Fund is a Special Fund of the Bone Cancer Research Trust raising vital funds for life-saving research into adamantinoma.

About the charity

Bone Cancer Research Trust

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RCN 1159590
The Bone Cancer Research Trust is the leading charity dedicated to fighting primary bone cancer. Our mission is to save lives and improve outcomes for people affected by primary bone cancer through research, information, awareness and support.

Donation summary

Total
£750.00
+ £135.00 Gift Aid
Online
£750.00
Offline
£0.00

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