Following the devastating diagnosis of Duchenne muscular dystrophy when he was just 4 years old, Nikita and Dan set up Dominic's Sunshine Trust.

Nikita Said

People always told us how beautiful our son is, they would always say he looks like an angel but also questioned why he seemed so little or wasn't hitting the expected milestones. As a mum I guess I filled that gap with excuses. I started to wonder why something seemed a little bit off and we saw various health professionals to try and answer concerns on speech, balance, coordination and melt downs. After 2 long years, Dominic was diagnosed with autism

During this time Dominic was at nursery and had repeated falls, the nursery staff noticed his lack of strength and suggested certain exercises. Nikita and Dan couldn't understand as they were doing everything asked of them but it wasn't working. One day at school Dominic had another fall that ended in a trip to A&E, at this point they demanded the pediatrician to do something