In April 2025 – Date weather permitting... Nathan will be Skydiving to raise money for a cause close to everyone’s heart within the SESKU area.

Nathan will jump from Skydive GB Parachute Club in Bridlington.

I hope that we can all come together and raise as much funding as we possibly can to help and contribute towards Piper Pathway.

Story

Piper is 3 from Upton Pontefract who was born with a genetic chromosome abnormality and is the only person ever to be recorded with this particular case. Although some of her disabilities are known to other syndromes she is utterly unique and for this reason her syndrome has no name and her prognosis is bleak.

A large percentage of Piper's brain is affected leading to severe complexities with cognition, muscle tone and coordination. With this Piper has global mental delay and is unable to speak or communicate. She has been tube fed from being 5 weeks old and has undergone numerous procedures. As a family we have lived between home and hospitals her whole life.

Having had her first physiotherapy session at just 7 days old Piper’s therapy journey has led to her successfully being able to hold her own head, sit, roll and stand independently. Piper has progressed from a fully supported standing frame to a walking frame which she enjoys thoroughly, she is unsteady on her feet and falls multiple times a day.

To continue getting stronger & defying the odds Piper needs regular exposure to more intensive therapies alongside specialist equipment which can not be accessed via the NHS. Treatment such as Hyperbaric oxygen therapy, Neurological rehabilitation and ongoing intensives could be life changing for Piper.

Each of these would play a crucial role to progress and support her development giving her a more purposeful and fulfilling life. Unfortunately, this comes at a considerable cost and we as a family just can not meet the need ourselves. In Piper's short life she has already overcome so many challenges and has shown nothing but determination and resilience to keep on fighting every single day and always with the biggest smile on her face. We so desperately want to be able to give our little girl the opportunities to continue to do just that.

This is why Piper’s Pathway was launched.

‼️We need your help‼️

💙 As you may know Piper has been lucky enough to be offered a place for further therapy in 2025. We are beginning to plan fundraisers throughout the year to raise the £20,000 needed to take this incredible opportunity…

🧡 So many of you do great things, we are kindly asking the next time you hold an event, plan a team game or set yourself a personal challenge to consider doing it in aid of Piper

💙 No matter how big or small every single £ counts!

Many larger companies have a charity pot set aside to donate to worthy causes each year, some of you may work for these company’s and it is as simple as putting Pipers Pathway forward to your employer/company HR.

🧡 Always let us know your plans as we love to join as many of you as we possibly can!

Please share/tag and help fill our 2025 dairy!