Joanne Griffiths

Joanne's fundraiser for Intractable Epilepsy Charity

Fundraising for Intractable Epilepsy Charity
£45
raised of £500 target
Donations cannot currently be made to this page
Join us on Purple Day, 26th March, to impact children with intractable epilepsy. Support our "100 Miles to Stop 100 Seizures" campaign!

Story

The aftermath of having a seizure is sometimes described as experiencing post-workout pains and can cause sufferers to feel muscle aches. So, to replicate that feeling, I am participating in Intractable Epilepsy charity's “100 miles to stop 100 seizures” campaign.

My son Ben has experienced a significant reduction in seizures with his privately prescribed medicinal cannabis, which costs nearly £2,000 every month. Intractable Charity helps families by providing them with a respite from the monthly financial burden. In certain cases, families are unable to secure funds to ensure their child's continued safe access to their cannabis epilepsy medication, which cannot be abruptly discontinued.

Seizures pose a life-threatening risk, so I kindly request your support for my 100-mile challenge. Please consider making a donation today, and if you are unable to donate, I would greatly appreciate it if you could share this fundraising page.

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About the campaign

Join us on Purple Day, 26th March, to impact children with intractable epilepsy. Support our "100 Miles to Stop 100 Seizures" campaign!

About the charity

Intractable Epilepsy Charity

Verified by JustGiving

RCN 1199192
The charity funds prescription costs of medicinal cannabis for those with Intractable Epilepsy when prescribed by a specialist clinician on the GMC register and in line with NHS guidance. Many of these children and young adults suffer hundreds of devastating seizures every day. Nearly all have exhausted the traditional pharmaceutical anti-epileptic drugs. Medicinal cannabis is the only medicine that helps. Medicinal cannabis has been legal in the UK since 2018, but access on the NHS remains blocked. So the families have to cope with the immense strain of fundraising up to £2,000 a month to access it privately and deal with the daily care of their sick children. Imagine if this was your child. Please help us to help them. Your donations will support the families to continue getting the medicine they so desperately need.

Donation summary

Total raised
£45.00
Online donations
£45.00
Offline donations
£0.00

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