My cousin Mike and his lovely partner Gemma had a beautiful baby, Kit, who was born in July 2023. He was a much loved younger brother to Alice and a longed for second child for Mike and Gemma.

2 days after his 1st birthday he was unwell with vomiting and was sleepy. In A&E they discovered he had a low blood sugar which prompted investigations and admission. They discovered he had was in acute liver failure.

Although his liver recovered, 2 days after discharge his family were told the devastating news that Kit had POLG related mitochondrial disorder (Alper’s Disease in his case). There is no cure and given his age and presentation, he was likely to deteriorate rapidly.

Kit sadly died on the 15/9/2024.

He is missed beyond words can say but his family want his legacy to be one that can give hope to others effected by mitochondrial disease by supporting The Lily Foundation to support families and one day find a cure, so other families will not be told "there is nothing we can do".

Please donate if you can and help me help them in memory of Kit.

Thank you