Story
On the 28th November 2022, Ella Enwright was born and after spending the first three months of her life in ICU we received the devastating diagnoses of Pearson Syndrome. An incredibly rare mitochondrial disease caused by a single large scale mitochondrial deletion reportedly affecting only 100 people worldwide and with a life expectancy of only 3-5 years.
On 17th May 2024, we will be attempting the Three Peaks Challenge, with the aim to summit the highest peaks in Scotland, England and Wales within 24 hours.
Our mission is to raise as much money as possible to enable research into mitochondrial diseases, and the more research we can do in this area, the more likely a cure is to be found for other families.
You can read more about Ella and the charity on their website: https://www.mymitomission.uk/ellas-mito-mission-bristol/