Ellee-Rose is our beautiful 20 year old daughter. When she was 18months old she was diagnosed with Epilepsy. Ellee-Rose started what we thought were night terrors from about 6months of age. She would scream and scream and you wouldn't be able to touch her, hold her, console her nothing and then it was like a light switch happened and she would just stop screaming and act like nothing had happened. This continued until the doctor ordered and EEG and she was diagnosed with generalised epilepsy.

Ellee-Rose has Absence sezuire's which look like she is just staring into space and then she will regain awareness again. This can last from 30sec to 2 minutes each time affecting her brain. Ellee-Rose also has myclonic sezuires, and she has also had 24hr of non-stop tonic clonic sezuires.

We as a family have been very fortunate to have Carol Ireland from Epilepsy Action Australia guide us through our Epilepsy journey and that's exactly what it is a constant journey that not only affects her but also our whole family unit.

As the leading and oldest provider of epilepsy services nationwide, Epilepsy Action Australia focus on improving self-management skills, increasing wider public understanding of this devastating condition, and are at the forefront of partnering and funding research into interventions and treatments.

Around 800,000 Australians experience the unpredictable and often debilitating effect of Epilepsy. The funds raised from this event will be put towards the vital services that Epilepsy Action Australia provides. These services include individual programs, community and professional education, information, referral, consultancy as well as personal development activities such as camps, workshops and weekend programs that help individuals grow through shared experience and peer support.

This year to support Purple Day for Epilepsy Darren and I will be holding a Golf and Dinner.

https://www.facebook.com/events/394408429616642?acontext=%7B%22event_action_history%22%3A[%7B%22mechanism%22%3A%22your_upcoming_events_unit%22%2C%22surface%22%3A%22bookmark%22%7D]%2C%22ref_notif_type%22%3Anull%7D

Saturday 16 March 2024

Starting @ The Links Golf Course Shell Cove

Get a team of 4, Make up your Team Name, Contact me to register and pay BEFORE 16/2/24

1pm Sign In

1.30pm Tee Off - Ambrose

Then Following Golf head to Gerroa Boat Fisherman's Club at 5pm for

2 course Dinner, 3hrs Beer, Wine and Soft Drink Package

All this for just $150pp or if you can't' make golf but you would still like to attend the dinner it will be $100pp

On the night we will be also having raffles and auctions.

Raffle Tickets will be $5each or 5 for $20

This page is the page for ALL payments. Please contact me as soon as you have either paid for golf/dinner or raffle tickets so I can allocate the correct ticket to you.

You are also welcome to donate to the cause through this page for a money donation, or you can contact me for a physical donation that is able to be used as a raffle prize on the night.

I am also looking for Sponsorship from Companies or Individuals. The cost is $1000 and this will give you 2 dinner tickets, advertising via social media event page, and advertising on the night of the dinner.

JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.