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We are approaching the 2nd anniversary of my Dad and loving husband of my Mum Târana who lost his life to Vasculitis.
Vasculitis is a rare inflammatory disease which affects about 2-3000 new people each year in the UK. Vasculitis means inflammation of the blood vessels. Any vessels in any part of the body can be affected. Primary Systemic Vasculitis can affect various organs, and the symptoms of vasculitis are easily confused with other illnesses, so the disease can go unrecognised for a long time.
The organs that can be affected may be the upper respiratory system (nasal passages and sinuses) and the lower respiratory system (trachea and lungs), ears, eyes, skin, kidneys, gastro-intestinal system, nervous system, and others. So different types of vasculitis can cause loss of sight, deafness, loss of digits or limbs, skin scarring and facial disfigurement, kidney failure, damage to lungs, trachea, nasal passages and sinuses, gastro-intestinal disorders, damage to the brain and nervous system and occasionally to the heart.
More details on this awful disease can be found on https://www.vasculitis.org.uk/about-vasculitis
With how rare this disease is, vital funds are needed for much more needed research and help for those who suffer from this fatal disease.
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