Matthew Goodsall

Matthew's fundraiser for Cure DHDDS

Fundraising for Cure DHDDS
£1,272
raised of £1,000 target
Donations cannot currently be made to this page
Event: CURE DHDDS JOGLE Tandem, on 30 August 2024
Cure DHDDS

Verified by JustGiving

RCN 1202643
We raise funds for DHDDS to further research into the gene mutation

Story

In early September, my awesome friend Charlie Dixon will be riding from John O’Groats to Lands End on a tandem bicycle over ten days to raise money for his Charity, Cure DHDDS.

Much to my amazement, I have agreed to ride one of the legs with Charlie on the back of the tandem - I'll be providing my feeble leg power between Ludlow and Bristol on Friday 6th September. Fortunately I just have to make the pedals go round and Charlie will be in charge of the grown-up stuff like swerving to avoid cows and pulling the brakes at the right moments.

Cure DHDDS was set up by Charlie and Mel Dixon, who in 2022 discovered that two of their three children have an ultra-rare gene mutation, called DHDDS. There are only 70 known people in the world who have this condition. There is little to no funding and there have been very few, if any, studies into the condition. Mel has been at the forefront of bringing together scientists, researchers and other families to try and source as much information as possible, with the hope of giving all those affected by the mutation the best possible chance of finding a cure.

More info can be found here: https://www.curedhdds.org/

Your help and contributions go directly to funding this vital research and I would be very grateful for your support.

Share this story

Help Matthew Goodsall

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

Cure DHDDS

Verified by JustGiving

RCN 1202643
Cure DHDDS is founded by parents of children diagnosed with a DHDDS gene mutation. We are not scientists or medical professionals but parents trying to find the best way of helping our children. Our mission is to support families diagnosed with DHDDS gene mutations, help drive research into these little-known mutations, and help find treatments so that those affected by variants in the DHDDS gene can lead the best life possible. Our vision is a world where there is a cure for everyone with a DHDDS variant.

Donation summary

Total raised
£1,271.20
+ £305.00 Gift Aid
Online donations
£1,271.20
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.