Thanks for taking the time to visit my JustGiving page.

Around 12 months ago my little girl Edith was diagnosed with a rare genetic condition called Rett Syndrome. To say that this was devastating would of course be a massive understatement. Her diagnosis completely changed our world and means that she will now have a remarkably different future than what we had anticipated.

Myself, Louise and a number of friends and family have helped us in raising funds for Reverse Rett UK over the last 12 months. The charity has been (and very much continues to be) an invaluable support for us during this turbulent journey. There is a lot of hope in the Rett community that a cure is on the horizon. Gene therapy trials are ongoing in America and we had the amazing news early in 2024 that they will shortly be starting in the UK! We hope that things will progress quickly but we need to be ready and funding is vital.

So with the above in mind, myself and my good friend Ash Lock are embarking on a 100km walk along the spectacular Dorset coast as part of the Jurassic Ultra 2024 event over the weekend of 18/19 May. Both myself and Ash are (being completely honest!) not the most physically imposing of individuals but wanted to give everything we have physically and mentally to achieve this for Edith. With only 48 hours to complete the walk, we will certainly need some motivation to get us around in time!

So if you are able to help we would love to use our efforts as a reason to raise some money for Reverse Rett who are working tirelessly to support families like us and are fighting for our daughter's future. Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.