Since our son Aadi was diagnosed with Spinal Muscular Atrophy, SMA UK have supported our family through some very difficult and challenging times. They are a wonderful charity, offering support and help to families up and down the country, advocating for better treatment and working to improve access to services for anyone with SMA.

Spinal Muscular Atrophy is a rare, neuromuscular condition, which affects around 1 in 10,000 children. SMA causes progressive muscle wasting (atrophy) and weakness. It may affect crawling and walking ability, arm, hand, head and neck movement, breathing and swallowing. How severely people are affected, and in what way, varies greatly.

Now in their 40th year, SMA UK is a charity that supports, campaigns and advocates so that everyone affected by Spinal Muscular Atrophy can access the best care, services and treatments, and benefit from continued research. They offer adults, young people, parents, relatives and friends emotional support, practical advice and guidance from their experienced team and provide reliable health and social care information about SMA. They also provide and distribute free multisensory toy packs for infants who are diagnosed with SMA.