We have put the pints down and are full steam ahead training for the TCS London Marathon 2024 to find our beautiful Mollie and kids like her an urgently needed cure.

Mollie was diagnosed 3 years ago with a devastating condition called Ataxia Telangiectasia - we are in a race against time to find a treatment for our special girl.

To many, Ataxia Telangiectasia or ‘A-T’ will not mean anything - as most will not have heard of this rare condition...but for Dale - Mollie’s Daddy and her Uncle John along with the rest of their family it has shattered their world...

Having A-T means Mollie and other kids like her struggle with balance, coordination, speech, swallowing and fine motor skills, this progresses from the age of 5 - Mollie is now 7. A-T causes tremors and children are eventually enabled full time by wheelchairs by the age of 10.

A-T also causes immune deficiency and problems with the respiratory system.

A-T is a very cruel disease that attacks children and currently there is NO TREATMENT and NO CURE... We are desperate for this to change.

There are no words to describe the suffocating feeling of knowing this lies ahead for our amazing little girl.

Although Mollie has always shown symptoms she is so active right now and especially loves gymnastics and to dance - the thought of slowly watching her lose the ability to do these things is heartbreaking , it’s the first thing we think of when we wake up in the morning and the last thought when we go to sleep. As a family we are learning to live every day with a broken heart - we are so desperate for a cure.

Every step we take will be for Mollie and those who can’t - they deserve the world and we would love it if you could all support us to help give Mollie and all kids with A-T a better future ahead.

Thank you,

Dale and John x

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