Luke Blackman

I'm supporting The Lily Foundation for Teddy and all those affected by mitochondrial disease

Fundraising for The Lily Foundation
£1,045
raised of £1,000 target
Three Peaks Challenge, 14 September 2024
Please join Team Teddy and help our Mito-Bear and The Lily Foundation fund vital research into mitochondrial disease and support families just like his ours live with the disease everyday. You can donate or why not take on your own challenge!

Story

We are embarking on the 3 Peaks Challenge in September to help raise awareness of mitochondrial disease!

At 11am on 24th January 2024, we were told he has a life limiting mitochondrial disease, and an extremely rare defected gene (DNAJC19). This defected gene causes something called dilated cardiomyopathy, which is the degeneration of Teddy's heart.

To the doctors knowledge, Teddy is only 1 of 55 in the world to carry this, and the only known case in the UK, so we have limited research and unfortunately no cure.

We want to help Teddy and to give hope to all those effected by mitochondrial disease so we am supporting The Lily Foundation a charity dedicated to funding vital research to find a cure and support families like Teddy.

Please give if you can and help us beat Mito!

About the campaign

Please join Team Teddy and help our Mito-Bear and The Lily Foundation fund vital research into mitochondrial disease and support families just like his ours live with the disease everyday. You can donate or why not take on your own challenge!

About the charity

The Lily Foundation

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RCN 1122071
The Lily Foundation funds research into Mitochondrial Disease and other metabolic disorders. It also raises important awareness and supports those families who are affected with metabolic disorders.

Donation summary

Total raised
£1,045.00
+ £153.75 Gift Aid
Online donations
£1,045.00
Offline donations
£0.00

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