Adam and I are jumping out of a plane on the 28th June in aid of SMA UK as part of their 40th Anniversary challenge! (And I hate heights!)

Spinal Muscular Atrophy (SMA) is a rare, genetic neuromuscular condition causing progressive muscle wasting and weakness leading to loss of movement. This may affect crawling and walking ability, arm, hand, head and neck movement, breathing and swallowing in babies and adults.

The charity provides accurate information and support to anyone affected by SMA through our support line and services and grants.

As advocates for the SMA Community, they work in partnership with other organisations to improve access to the best care, services and treatments available within the UK to allow people living with SMA to lead full lives.

There are different forms of SMA and a wide spectrum of how severely children and adults are affected.

There is no cure for SMA so please show your support, it will be much apprecaited!