I have chosen to support EDs UK as they have been able to provide me with much needed support through my personal diagnostic journey. I was very recently diagnosed with Hypermobility Spectrum Disorder (HSD) after over 10 years of fighting for a diagnosis. I am grateful for their continued support and want to help them continue to support people like me.

I am participating in the NI Dazzle Walk 2024 to raise money for The Ehlers-Danlos Support UK. To raise much-needed funds and awareness for EDS UK as a charity to allow EDS/HSD Northern Ireland to be able to support all our group members through face-to-face and online meetings and to be able to raise further awareness for EDS and HSD Northern Ireland. EDS UK does not charge any members for support as they do not want money to be a barrier to getting the support you need so fundraising is very important.