Thanks for taking the time to visit my JustGiving page.

Our gorgeous little Edith is going to be 2 years old!

3 weeks ago we were given the devastating news that Edith has a rare genetic condition called Rett Syndrome. It has turned our world upside down and presents us with a very different future for our beautiful little girl than what we had anticipated.

The most amazing thing we can do for right now is to raise funds for this incredible charity. There is a lot of hope in the Rett community that a cure is on the horizon. Gene therapy trials are starting in America soon and here in the UK we hope things will follow very quickly. But we need to be ready and funding is vital.

So if you are able to help we would love to use Edith's birthday as a reason to raise some money for Reverse Rett who are working tirelessly to support families like us and are fighting for our daughter's future.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.