We are supporting The Lily Foundation for Teddy and all those affected by mitochondrial disease

Linda and Paul Southwell is raising money for The Lily Foundation

Walk from Canterbury to Rome · 16 May 2025

Please join Team Teddy and help our Mito-Bear and The Lily Foundation fund vital research into mitochondrial disease and support families just like his ours live with the disease everyday. You can donate or why not take on your own challenge!

Story

In January 2024, 2 year old Teddy Ward from the Isle of Wight was diagnosed with the a life limiting mitochondrial disease, and an extremely rare defected gene (DNAJC19). This defected gene causes something called dilated cardiomyopathy, which is the degeneration of Teddy's heart.

To the doctors knowledge, Teddy is only 1 of 55 in the world to carry this, and the only known case in the UK, so we have limited research and unfortunately no cure.

Join us in supporting a vital cause

Linda and Paul, avid hikers with the dream of hiking the 1,250 mile pilgrims route from Canterbury to Rome in May 2025, are combining their passion for adventure with a mission to help families like Teddy's, raise funds for research and to help beat Mito! Join us in making a difference for those battling this condition.

How you can help: Linda and Paul are dedicating their upcoming trek to raise funds for research and support for children like Teddy. We need your help to reach our fundraising goals!

Donate now! Your contribution will go directly towards funding research and providing hope for families affected by mitochondrial disease.

Together we can make a difference!

Help Linda and Paul Southwell

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About the campaign

Please join Team Teddy and help our Mito-Bear and The Lily Foundation fund vital research into mitochondrial disease and support families just like his ours live with the disease everyday. You can donate or why not take on your own challenge!

About the charity

The Lily Foundation

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The Lily Foundation funds research into Mitochondrial Disease and other metabolic disorders. It also raises important awareness and supports those families who are affected with metabolic disorders.

Donation summary

Total
£1,911.62
+ £470.41 Gift Aid
Online
£1,911.62
Offline
£0.00

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