My little sister Lexi has recently been diagnosed with a rare genetic chromosomal disorder and she is one of 25 children in the world to be diagnosed with GNAI1 variant. My aim is to remove the stigma surrounding genetic disorders by continuing to share my sister’s story and working closely with local specialist schools in my area. I have already had the fantastic opportunity to meet the head of the genetics department at Liverpool Women’s hospital to talk about my campaign plans.

I am extremely grateful to announce my partnership with the Genetic Alliance UK organisation I will be working closely with the team on future projects for 2024.