Story
Good evening lovely people
I go again ! After the success in raising money last year for mollies miracles and action for A-T ,I will be going out my comfort zone and doing the London marathon 2024..
Thousands do it ? Nothing special, but at 38 years old, 22 stone and knees like a wonky wardrobe. This isnβt going to be easy.
But with a good diet , no alcohol and plenty of running, Iβm sure i will complete this task for this amazing girl and charity.
Im fired up for this one π₯π₯
The reason why im running over 26 miles β¦
As some of you are aware, and some not , my friend George barkers little niece Mollie has been diagnosed with a rare neurodegenerative childhood disease Ataxia Telangiectasia or βATβ.
To many this will mean nothing - as most will not have heard of this condition... to george and his family it has shattered their world...
Having AT means Mollie and other kids like her will struggle with balance, coordination, speech and fine motor skills, this progresses from the age of 5 - often causing tremors and children are eventually enabled by wheelchairs by the age of 10.
Currently there is NO TREATMENT and NO CURE...
There are no words to describe the suffocating feeling of knowing this lies ahead for this amazing little girl.
Although Mollie has always shown symptoms she is so active right now and especially loves gymnastics and to dance - the thought of slowly watching her loose the ability to do these things is heartbreaking, itβs the first thing her parents think of when they wake up in the morning and the last thought when they go to sleep, it over shadows the happy times and they are so desperate for a cure.
AT is a CRUEL DISEASE that ATTACKS CHILDREN - We need to raise urgent awareness and funds to help all children with A-T find a treatment or better a cure.
Thank you for reading β€οΈ